About the FARF 5K Superhero Run

This fun superhero themed 5K is being held in honor of Blake Robison and Isaac and Avery Graham-Anderson. The event will benefit the Fanconi Anemia Research Fund.

Blake, Isaac and Avery have Fanconi anemia. Fanconi anemia (FA) is a rare, inherited, cancer-prone disease that often leads to leukemia, bone marrow failure, and physical abnormalities, with an average lifespan of 33 years. All three boys have endured bone marrow transplants at Seattle Children's Hospital, under the direction of the Seattle Cancer Care Alliance. Though all three are doing very well, they still have a hard road ahead as FA has no cure. Their risk of complications and cancer at an early age is much higher than the general population so early detection and monitoring by a team of doctors for the rest of their lives is essential.  

The impact of FA research is huge, considering it is a very rare disease affecting just 1000 people worldwide. Fanconi anemia research benefits everyone, not just those who’ve been diagnosed with FA. Because of FA, Blake, Isaac and Avery are 500-700 times more likely to develop cancer at an early age. We’ve all been touched by cancer, and FA research furthers the advancement of cancer treatment. Our research helps those who suffer from many different cancers and blood diseases. In fact, five of the genes associated with FA are cancer susceptibility genes, including the BRCA breast cancer genes. The first-ever cord blood transplant was performed on a Fanconi anemia patient. FA researchers are on the cutting edge of gene therapy and gene editing. In 2015, FARF awarded over $950,000 in grant funding for FA research. This is more than half of their annual budget.  

We’ve partnered with the Fanconi Anemia Research Fund, which means that all donations, either financial or in-kind, are tax deductible. ​