$19,000 raised this year for The Fanconi Anemia Research Fund!

Blake

Blake is a happy 6 year old from Maple Valley. He attends Kindergarten at Glacier Park Elementary and loves learning and making friends. He will talk your ear off about Angry Birds, Star Wars, Legos and superheroes. He loves his 3 year old brother, even though they fight all the time. He loves learning about animals and has quite the collection of stuffed friends. Upon first meeting him, you would never guess that he has a terminal rare disease. But on a closer look you would see that he has bruises all over his arms and legs, he gets tired quickly and is smaller than the rest of the kids his age.


Blake was born with an extra thumb, mild hearing loss in one ear and mild hypospadias. His extra thumb was removed at Seattle Children's Hospital when he was only a year old. The doctors at Children's suggested he see a geneticist to see if any of his abnormalities were connected. After nine months and many tests, Blake was diagnosed with Fanconi anemia when he was almost two years old.  


Blake's family was almost immediately connected with The Fanconi Anemia Research Fund  and were able to attend Camp Sunshine  the following summer. At Camp Sunshine in Casco, Maine they connected with other families who were going through the some of the same things they were. That's where Blake met Isaac and Avery. Now the Robison family travels to Maine every summer to continue making those irreplaceable connections to other families who are affected by Fanconi anemia. 


Since Blake's diagnosis he has undergone more blood draws, pokes, doctor appointments, procedures and biopsies than the average adult. He is only 6 but one of the bravest people you'll ever meet. He will tell you, "I have to get blood draws because my blood doesn't work right." 


Blake is currently in severe bone marrow failure. He will be undergoing a bone marrow transplant at Seattle Children's Hospital starting at the beginning of May. This process is not an easy one. Bone marrow transplants are a grueling process to begin with but Blake's Fanconi anemia makes it even more complicated. People with FA cannot handle the same kind of radiation and amount of chemo that a normal transplant consists of. It will be a long and painful process. Blake won't be able to return to his own home until August. 

     

Blake and his family live life to the fullest everyday. They fundraise for FARF because that is one thing they can control in this awful disease. Supporting  research so that Blake and other kids with FA have a better chance at living a long happy life is a high priority.


If you'd like to donate directly to Blake's family to help with the costs associated with his bone marrow transplant, click the button below.